National Down Syndrome Society

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National Down Syndrome Society
NDSS logo.jpg
Abbreviation NDSS
Formation 1979
Purpose Disability Advocate
Headquarters Manhattan, New York City, New York, USA
Official language
English, Spanish
Sara Hart Weir
Website NDSS Official Website

The National Down Syndrome Society (NDSS) is an American organization that offers support to people with Down syndrome, their families, friends, teachers, and coworkers, and educates the general public about Down syndrome. The mission of the NDSS is to be the leading human rights organization for all individuals with Down syndrome.[1]


The NDSS was founded by Betsy Goodwin and Arden Moulton. Goodwin's daughter Carson was born in 1978 with Down Syndrome. The parents soon discovered that the support and resources available to parents with Down syndrome children were very limited. Goodwin and Arden decided to create the NDSS, which gained official nonprofit status in 1979.

Areas of Programming

NDSS focuses on four items of programming to enhance the quality of life for those with Down syndrome.

  • The National Policy Center creates systematic change through legislative policy.
  • The National Buddy Walk Program honors and celebrates individuals with Down syndrome in their communities.
  • The Public Awareness Initiatives bring new and positive presentations of Down syndrome to the public.
  • The Community Programs provide information and resources about Down syndrome.


  1. ^ "Mission & Vision - National Down Syndrome Society". Retrieved 2017-01-11.

External links

  • National Buddy Walk® Program
  • Official website

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